Hi everyone,
I am working with a caregiver of a patient with PSP and he is looking to connect with other caregivers of PSP. He (and I) have done some internet searching to find a chat room or online support but have not found anyting. Does anyone know of such on line support for caregivers of PSP patients?
Thanks
Elaine
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Hi Elaine,
ReplyDeletewemove.org has a section focused on PSP and a general (I believe open to all movement disorders) discussion forum on their website. While wemove.org focuses on more than PSP, the discussion forum may be a good place to post a question about online supports. More than one caregiver has told me that they have found their site and discussion forum helpful.
Jason
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